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How Rare Is Neurofibromatosis: Prevalence, Types, and What the Numbers Mean

How Rare Is Neurofibromatosis is a common question when learning about the condition. Neurofibromatosis is rarer than many common conditions, but not so rare that it’s unknown—you’re looking at roughly 1 in 3,000 people for the most common form (NF1), with other forms occurring far less often.

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